Hey there, you! How’s your day been? New year treating you well so far?
Its been an interesting start to the new year here. At the end of last year I had my youngest in and out of specialist offices and diagnostic testing, to discover that the kiddo has Rheumatoid Arthritis. Another auto-immune disease in the family. My heart broke, and I was incredibly relieved all at once. Heart broken because the early testing on the kid was becoming more and more invasive and the results were becoming more and more scary. At one point there, a specialist discussed with me that we needed to NOT research what was happening online – that although the results were scary there was nothing guaranteed until we looked a little closer. I knew what the doctor was saying and I completely understood. I didn’t look online because I was fkn terrified. I knew that a lot of what we were seeing were commonly seen in kids with Leukaemia diagnosis and I was scared senseless. The relief came when we were finally given the diagnosis, purely because it wasn’t Leukaemia.
The Rheumatoid Arthritis diagnosis was still a major shock to the system though. Medication and dosage has been a big hit too, it’s scary to see my kiddo hurting, and more horrible still to see that the medication at the moment seems to be making her sicker. In situations like this I would usually hold off on making decisions and do some research, see what sort of natural or alternative therapies we could try. But the symptoms at this point are just too advanced to wait so here we are. Trying to maintain high spirits and stay focussed on healthy and happy. She has some days when the pain is horrible, but I can see hope of it being better and that what I’m trying to stick with. She is a tough cookie and I have had a couple of moments now where I have been so completely overwhelmed with pride. Like when she came home with a bunch of flowers, that she bought for herself. She wanted to feel better and fresh flowers cheer her up. In that moment, I knew she would be okay. Whatever comes next, she is a tough cookie and she’ll be okay. And I have got her back all the way.
The one thing I realised in this is that I really am solo parenting these days. I kept the ex in the loop with all this stuff, and he was concerned and supportive, but at no point did he ask or offer to come along to any of the appointments and I had to really hold back from asking him to be there. It would have been really great to have him there to support her, and if I’m completely honest, I could have done with him being there too. I would have loved for him to be there. But it is what it is right?
I’m focussing on the future, staying positive and taking care of me and mine. The recent health scares have started us on a bit of a health kick and I have been doing more around the house, trying to make this little space of ours more homely. I have no doubt this new year is going to be a new adventure than anything we have faced before, but we got this shit!